@article{609f0f66c5c14540ab477a2145a469a8,
title = "Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease",
keywords = "Assessment, Family-centered care, Inborn errors, Metabolism, Outcome measures, Outcomes research, Patient outcomes, Patient-centered care, Patient-centered outcomes research, Rare diseases",
author = "{On behalf of the Canadian Inherited Metabolic Diseases Research Network (CIMDRN)} and Khangura, {Sara D.} and Karaceper, {Maria D.} and Yannis Trakadis and Mitchell, {John J.} and Pranesh Chakraborty and Kylie Tingley and Doug Coyle and Grosse, {Scott D.} and Kronick, {Jonathan B.} and Laberge, {Anne Marie} and Julian Little and Chitra Prasad and Lindsey Sikora and Komudi Siriwardena and Rebecca Sparkes and Speechley, {Kathy N.} and Sylvia Stockler and Wilson, {Brenda J.} and Kumanan Wilson and Reem Zayed and Potter, {Beth K.} and Valerie Austin and Annette Feigenbaum and Laura Nagy and Marni Brownwell and Catherine Brunel and Robin Casey and Alicia Chan and Shailly Jain and Maggie Chapman and Sarah Dyack and Jane Gillis and Linda Dodds and Deshayne Fell and Michael Geraghty and Erica Langley and Alette Giezen and Keiko Ueda and Hilary Vallance and Cheryl Greenberg and Astrid Guttmann and Robin Hayeems and Fiona Miller and Aneal Khan and Jennifer MacKenzie and Bruno Maranda and Aizeddin Mhanni and Grant Mitchell and Meranda Nakhla and Amy Pender",
note = "Publisher Copyright: {\textcopyright} 2015 Khangura et al.; licensee BioMed Central.",
year = "2015",
month = feb,
day = "13",
doi = "10.1186/s12887-015-0323-x",
language = "English",
volume = "15",
journal = "BMC Pediatrics",
issn = "1471-2431",
publisher = "BioMed Central",
number = "1",
}
